Events
Events
Local rare disease events
We hope you find this list of local rare disease events useful - please do email us to have your event added to this page.
Living with a Rare Disease
Workshop / Seminar / Course
Date: 25/02/2021
Time: 12:30PM - 2:00PM
Location: Remote public webinar - please register at the following link: https://ucd-ie.zoom.us/webinar/register/WN_-fvMML1yQLqY7LUPJjFlrg
Rare Disease Research and Teaching Initiatives in Academia
Workshop / Seminar / Course
Date: 18/02/2021
Time: 12:30PM - 2:00PM
Location: Remote public webinar - please register at the following link: https://ucd-ie.zoom.us/webinar/register/WN_yV6u-NNsRO2x0wBcvPV8zg
Unlocking the potential of genetics and genomics in Rare Diseases
Workshop / Seminar / Course
Date: 11/02/2021
Time: 12:30PM - 2:00PM
Location: Remote public webinar - please register at the following link: https://ucd-ie.zoom.us/webinar/register/WN_4mG1CTDVS9OfeX4eK7LP_w
Learning more about advanced genetic testing - a prenatal perspective
Workshop / Seminar / Course
Date: 24/07/2020
Time: 1:00PM - 2:00PM
Location: Remote seminar - please join via Microsoft Teams
Rare Disease Day 2020
Conference / Symposium
Date: 28/02/2020
Time: 9:15AM - 4:00PM
Location: Riddel Hall: https://www.qub.ac.uk/sites/campus-food-drink/RiddelHall/
Rare Disease Research above and beyond
Lecture / Talk / Discussion
Date: 30/01/2020
Time: 1:00PM - 2:00PM
Location: Level 2 Seminar Room, Institute of Clinical Sciences, Block B, Royal Victoria Hospital
RARDTAC - carer focus
Community Event
Date: 16/01/2020
Time: 12:15PM - 2:30PM
Location: Bangor Carnegie Library
Hamilton Road
Bangor, Co. Down
BT20 4LH
Rare diseases and specialised commissioning in England - genomics, research and access to medicine
Conference / Symposium
Date: 9/01/2020
Time: 8:30AM - 5:00PM
Location: The Caledonian Club, 9 Halkin Street, London SW1X 7DR
RARDTAC - living with a rare disease
Community Event
Date: 9/12/2019
Time: 10:00AM - 2:00PM
Location: Ards Blair Mayne Wellbeing and Leisure Complex
1 Dairy Hall Lane,
Newtownards, BT23 4DB
UK Rare Disease Forum Conference
Conference / Symposium
Date: 29/10/2019
Time: 10:00AM - 4:00PM
Location: City of Edinburgh Methodist Church, 25 Nicholson Square, Edinburgh, EH8 9BX
2019 All Ireland Vasculitis Conference
Conference / Symposium
Dates: 4/10/2019 - 6/10/2019
Time: 4:00PM - 2:00PM
Location: Clare Lodge Holiday Centre
https://www.svp.ie/what-we-do/holiday-centres/clare-lodge-holiday-centre.aspx
RariTea 2019
Community Event
Date: 4/03/2019
Time: 10:30PM - 2:30PM
Location: Harrison's of Greyabbey
International Rare Disease Day 2019
Conference / Symposium
Dates: 28/02/2019 - 28/08/2019
Time: 9:00AM - 2:00PM
Location: Chartered Accountants House, Pearse St, Dublin 2, Dublin, Ireland